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Thursday 27

Thursday 27

. 09.15 Introduction To Best Clinical Practice Guide

Introduction To Best Clinical Practice Guidelines In Eb

. 09.30 Best Clinical Practice Guidelines In Dental

Best Clinical Practice Guidelines In Dental Care In Eb

. 10.15 Best Clinical Practice Guidelines In Pain Ma

Best Clinical Practice Guidelines In Pain Management In Eb

. 11.00 Best Clinical Practice Guidelines In Occupat

Best Clinical Practice Guidelines In Occupational Therapy In Eb

. 13.30 Cancer In Eb Session: Introduction

Cancer In Eb Session: Introduction

. 13.40 Clinical Case Of Rdeb And Scc

Clinical Case Of Rdeb And Scc

. 13.50 Jeb And Risk Of Scc

Jeb And Risk Of Scc

. 14.15 Best Clinical Practice Guidelines In Cancer

Best Clinical Practice Guidelines In Cancer Management In EB

. 16.00 Protein Therapy Development Program And Lotu

Protein Therapy Development Program And Lotus Tissue Repair

Friday 28

Friday 28

. 09.05 Movie 'Jesse visits the hospital'

Movie 'Jesse visits the hospital'

. 09.20 National Group Sessions, Establishing Centre

National Group Sessions, Establishing Centres Of Clinical Excellence:

. 11.10 General Assembly

General Assembly

. 14.00 When Does Care Enhance Well-Being And When I

When Does Care Enhance Well-Being And When It Can Hurt The (Long-Term

. 14.40 What Are The Benefits And What Are The Disad

What Are The Benefits And What Are The Disadvantages Of Combining Par

. 15.40 Living With Eb

Living With Eb

. 15.40 Have Every Confidence In Your Own Possibilit

Have Every Confidence In Your Own Possibilities

. 16.10 Panel Discussion

Panel Discussion

. 19.00 Dinner In Town

Dinner In Town

Saturday 29

Saturday 29

. 09.05 Opening

Opening

. 09.15 Selected Cases With EB

Selected Cases With EB

. 09.30 Cardiocutaneous Syndromes

Cardiocutaneous Syndromes

. 09.45 Phenotype Prediction In Deb

Phenotype Prediction In Deb

. 10.00 Functional Correction Of Rdeb In Vitro And I

Functional Correction Of Rdeb In Vitro And In Vivo

. 10.15 Protein Therapy In DEB

Protein Therapy In DEB

. 11.00 Staphylococcus Aureus Epidemiology In Eb

Staphylococcus Aureus Epidemiology In Eb

. 11.15 Revertant Mosaicism

Revertant Mosaicism

. 11.30 Revertant Cell Therapy

Revertant Cell Therapy

. 11.45 Best Presentation Award

Best Presentation Award

. 13.40 Update On International Eb Research

Update On International Eb Research

. 14.20 Measurement Of Quality Of Life In EB

Measurement Of Quality Of Life In EB

. 14.50 Terminal Phase In Herlitz Jeb: Experiences A

Terminal Phase In Herlitz Jeb: Experiences And Data

. 15.50 Innovations From Member Groups

Innovations From Member Groups

. 16.20 Ambitions Debra International 2012

Ambitions Debra International 2012

. 16.50 Declaration Of Rights

Declaration Of Rights

. 17:00 Childrens Song and Closing

17:00 Childrens Song and Closing

. 19.00 Dinner In Town

Dinner In Town

Sunday 30

Sunday 30

. 09.00 Social Work/Psychology

Social Work/Psychology

. 09.00 Nursing

Nursing

. 09.00 Nutrition

Nutrition

. 09.00 Fundraising

Fundraising

. 12.00 Plenary Final Session

Plenary Final Session

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